In addition, my oldest has been working on a project for the previous two and a half weeks that he finally figured out and achieved. He desperately wanted to share his success with me and I'd been so busy - not to mention exhausted - all week. He was frustrated with me, but tried very hard to accept my limitations not as disinterest, but simple exhaustion. Friday was our night to examine his work - just the two of us.
I have to say that he did a fabulous job. His task was to take my ten year old laptop and my fifteen year old desk top and merge the content of both onto a new (his old) laptop with an updated operating system; iTunes, music, software, drivers and everything. He did it - flawlessly. It's perfect and everything is here . . . a seamless transition. There is no way in the world that I could have done it on my own. I just don't speak 'IT.' He does - fluently and it shows.
I got so carried away in his ability and he was so excited to show me all the new bells and whistles that he had employed (not that I understand how) that before we knew it, it was almost 8pm. We were both starving, well past 'crabby' and quickly approaching 'hornery' on the hungry meter so we decided we needed to go out to eat.
Normally, when we go out to eat we stop for Chinese food. He's familiar with it and the people who work there. It's extremely consistent which makes it a safe bet. The also have items that he enjoys like Egg Drop Soup, Sweet and Sour Chicken and steamed rice.
The other place he enjoys is an Italian place. They will make Pasta Alfredo for him and leave off all the leaves, garnishes and other food items that most people find attractive. As well, he likes to sit at the 'bar' and watch the cooks in the kitchen. This way he can actually watch them make his food to be sure they don't put anything 'extra' in it. It's a perfect environment - if he can't be at home where he can be relatively certain that I won't throw him a curve where his dinner is concerned.
So this is why I was so surprised when he said that he was so hungry, but also tired of Chinese.
What?! Really? Hmmm . . .. Now what was I going to do? I hadn't even considered going to any other place to eat. I don't usually have the option, but here it was practically handed to me. Normally, this would be fun because we get to go find a new place. But I'm sure it didn't equate to 'fun' for Jackson. Trying a new restaurant when he's already hungry and the possibility of him being disappointed in what arrives in front of him is pure stress.
Personally, I love trying new places and I'm okay with being let down, surprised or happily content with what another cook's version of the food I order. I expect one of these outcomes. however, when my son goes out to eat nothing changes. He wants the same certainty that he gets at home and that's a rarity. So when he finds it - we stick with it.
Nervously, I drove on desperately hoping we wouldn't end up at some grease-infused, fast food oasis.
Where we ended up is definitely not on my list preferred eating establishments, but it's a safe place for my son - in a pinch. Since there are so few of them, I gladly took it. The alternative (the new Lebanese restaurant that I've been wanting to try) was entirely out of the question because he doesn't know what Lebanese is. I'm not sure I do either, but I'd be willing to find out. My son . . . not so much.
Dinner is different with an Aspergian because there are rules that must be followed regardless the environment. Despite that my son knows there are several different types of protein on our menu at home, All meat is labeled, "chicken." As well, there must be cheese. It's not negotiable. Vegetables cannot be consumed unless they're cooked to a point where they balance precariously on a fine line between mushy and not quite done. There can be no crunchy broccoli and only the tops are consumable. He hates all onions, doesn't like sauces, will shave the charcoal-grilled marks off everything before it's consumed and anything that resembles a casserole or a compilation of flavors is summarily rejected.
No lumps or specks, no matter how indiscernible their flavor, no 'mixed up' foods, no textural deviance's. Think 'vanilla ice cream' and then apply those parameters those parameters to all foods. Okay so now you get it. It's difficult to find foods he will eat. Pizza is okay, but not all pizza. If it's some Artisan - style fancy pants, pizza with whole, fresh basil leaves and thin slices of tomato - it may as well be Tuna Casserole and is immediately relegated to the very bottom rungs on the "Acceptability Scale."
It's true. My son had rules about food. But don't we all? What is the difference between his dislike of parsley and another's complete horror at the thought of coming within five feet of Wasabi or a Cucumber? Is there a good reason why I should try to force my son to change his distaste for sweet potatoes when my other son would not eat a mushroom to save his life? What is the real difference here?
Nothing.
There is no difference beyond that for some unexplained reason we try to change those with Asperger's because they have Asperger's instead of accepting that they just might not like sweet potatoes because they're human and have a right to opinions and the ability to decide what they just don't care for.
My son would be happy with a fillet Mignon, fettuccine Alfredo and steamed broccoli for dinner three nights a week within a repertoire of five meals that were placed on rotation this way he would know what we're having for dinner in advance.
Actually, it's all everyone cares about. We just don't say it. He's not so different from any of us. His difference is that he talks about it and insists that we acknowledge his likes and dislikes as opposed to selfishly overlooking them because it's a lot less work.

No comments:
Post a Comment